Her motivation to engage with us was pretty low. Child life brought her a soft warm blanket and a squishmallow and those things cheered her a little.
By afternoon, she started perking up and talking a bit more and then her pain snuck up again and she started having apnea episodes while asleep. We consulted with the Dr on shift and since her neuro checks were fine and she'd just been better than Monday night, we decided it was probably the pain causing her to hold her breath while asleep. So Dr ordered a slow dose of morphine over the next 8 minutes. This did the trick and Jay slept peacefully and kept breathing for the next couple of hours.
When she next woke up she was much more energetic and asked to eat her Mandarin oranges, on her own! She played tablet and was okay with doing a video call to her sisters. She also has gone over 6hrs without vomiting or retching, praise God! That was getting really hard on everyone!
After one of her naps she woke up and felt her head. Then said "oh that WAS a dream." She dreamed they took the bandage off and she was home 🥺 it was a good opportunity to remind her that goal is what we are working towards.
About midnight, she was woken up by her neuro check and I asked her if she wanted to go potty. She first said no, but after some thought, "oh I might as well" and starts unplugging herself 😂 she's gotten quite good at knowing what plugs into where and not only unplugs herself but plus herself back in!
We knew since she was doing so much better we'd be transferring to the surgical floor probably sometime overnight and sure enough got word about 4am it would be time to move in about 30 minutes.
So now we are settled on 4th floor south, in a beautifully quiet single room 🙌 thank you Jesus! Jay is not so sure about the change in surroundings and shut down some, refusing to speak to the new nurse, but I've heard this is the fun floor where the kids work on getting some normal back so hopefully she'll get comfortable quickly.
Jon went back to our hotel for the night, he'll be back on the morning shuttle.
This picture is from earlier in the day, but I knew she was feeling a bit better when she started controlling her own tablet. She also played Pokemon go quite a bit tonight too.
She started asking about her hair and the shaving, and I told her a little bit is shaved and showed her where it would be on me. She started to get upset and I told her, when she has a ponytail it won't be super visible and once her hair grows back she won't even notice it. Then I asked her if she remembered a friend of her's Mom. She said yes. And I said, "She's a cranio-warrior too like you, she has a scar like that." And Jay got real big eyed and said, I've never seen it! I said yep, cuz the hair covers it! And that comforted her 💜 the scar and the hair has been a big part of her anxiety over all of this. It was the last thing she asked me about before they put her to sleep in the OR. I'm hoping seeing the bandage come off won't be too hard on her, but knowing it's another step closer to coming home should help.
❤️❤️❤️
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