Jaylia does have significant icp. 16mmHg. The range to qualify her for conventional cranial vault remodeling (CVR) was 15-25.
They are currently prepping her for the CVR procedure. It's a long one, 5-6 hours probably.
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One year later
One year ago today. It doesn't seem like enough time has gone by for it to have been a year! It feels very surreal to think about where ...
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One year ago today. It doesn't seem like enough time has gone by for it to have been a year! It feels very surreal to think about where ... -
April 7th (yesterday) was Jaylia's one month Cranioversary! Her surgeon cleared her for all normal activities! It's crazy how fast... -
Saturday we slept way in, about 12 hours total..it's safe to say we were all exhausted. Jon and I ordered in some Indian food that was ...
And the journey continues - she is in the hands of professionals - and angels. Wendy
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